The Fibromyalgia File: One Year Update

A glance at the calendar reminds me of the upcoming one year anniversary of a disaster– my own pharmaceutical train wreck, complete with panic attacks and withdrawals bells and whistles.

It’s not funny to be diagnosed with a chronic illness.

Not funny, at all.

What’s less funny, is when the drugs that work for “most people” nearly kill you.

Um.

@#$%.

Where to go next?

Acupuncture.  Purposely allowing someone to put needles in your face.  hands. toes.  I think this every time I go.  And by that, I mean, I went in for my sixth visit in July and was pain-free until December.  I didn’t get back in until the second week of January, and I’ve been in once more since then.  It’s about time to go back.

The winter is the worst.  It’s a veritable kaleidoscope of symptoms.  This year, I can point to the cause and keep walking.

Saturday, I worked in the yard. Since then, I’ve paid the piper.  In all fairness, I’m not 30 years-old anymore.  I’ve also been in the chair all winter.

I did a lot of exercise last summer.  Which didn’t come to a screeching halt, but tapered off gradually.  I didn’t notice a difference.  Like the doctor insisted it would.  But then, she also told me to keep on taking the meds when I had every side effect on the “Notify Your Doctor Immediately” list.

Yes, I read the patient information sheet when I get a prescription.

No, your doctor really doesn’t want you to do that.

I digress.

One year in?

My life is better.

When I hurt, I can laugh at the pain and say, “It’s Fibro.  It isn’t anything.”

When I can’t sleep, I just get up until I can relax again.  I can stop feeling desperate.  ”It’s Fibro.  This is what we do.”  Usually, I can drop back off again for an hour or so.  Typically, I’m up at 3:48 (yes, that exact).  Maybe I’ll drop off again or maybe not.

The insomnia may account for what they call Fibro fog or dyscognition.  That links to a nice tidy definition. It basically means: I might be able to think if I could only think.  This is probably the most irritating to me because I don’t realize it’s getting me until I’m got.

The accompanying depression? It is a diagnostic criteria for Fibromyalgia, but that’s just too freaking bad.  I am unmerciful to it.  Which sounds weird, I know, but things are different now.  Depression is a lie. I walk right in and attack it like it’s an intruder trying to get to my kids.  Because it is.  And I fight dirty.

One year in?

Things are different.

Life didn’t stop just because I got a diagnosis.  This probably isn’t a revelation for other people.

Fibro had to submit to the budget, schedule and order of priority.

They say, “What doesn’t kill you makes you stronger.”*

Fibromyalgia specifically doesn’t kill you and fights to make you weaker.

I am less sick today because the diagnosis made me turn and face the right enemy.

I am not stronger today because I fought the fibro.

I am stronger because my fight against that unseen enemy trained me for the battle of a lifetime against other unseen enemies.

I’m not afraid of much anymore.

Not afraid of much at all.

 

 

 

 

 

*They said it before Kelly Clarkson.  I had to rename a chili recipe because of her.

 

 

 

 

 

 

 

Comments

  1. I will hit the 2 year mark in August. Can hardly believe it. This winter has been the worst! Way too cold and wet, so I know exactly how you feel. I’m glad you’ve found some things that help. I don’t take anything prescription other than Meloxicam when the pain is bad be it a migraine, joint pain, muscle aches, etc. I mostly try to watch what I eat (soy and preservatives make me worse along with a few other things) and take a bunch of vitamins. I am trying to work back into being more active now that the weather is warming up, too. It is not easy, but I tell myself I must because I need to function as normally as possible, for me and my family. Fibro definitely does make you ready to face more than you ever thought possible. Best of luck to you in the years to come!

  2. You, my dear, are a powerhouse. Here me roar! This journey is not for the faint of heart.

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